Monday, July 12, 2010

Never, Ever Give Up!

We are like clay jars in which this treasure is stored. The real power comes from God and not from us. We often suffer, but we are never crushed. Even when we don't know what to do, we never give up. In times of trouble, God is with us, and when we are knocked down, we get up again.   2 Corinthians 4:7-9

Emilie had a great weekend and a great Sunday filled with super nurses, visitors, a magic lesson, a chocolate fountain (provided by Sunshine Kids), lots of walking around campus, wheelchair races with my three boys and a new way to do family dinners.  Paul arrived home from Camp Okizu Sunday and Emilie was so excited to see him.  He brought her many "friendship bracelets" that he made at camp and the kids even had some quiet time alone to chat.  We had our first ever LPCH Crazy Train family dinner with take out "Buca" at the cafeteria courtyard.  Emilie had seconds followed by a Drumstick!  Fun, fun time. 

Medically speaking...Emilie is currently undergoing her 5th plasmapheresis treatment today.  She has not shown any sign of movement in her legs, but the renal doctor came in and said that it may take awhile.  It is not looking like a typical Guillain Barre Syndrome, but may be due to a chemo toxicity.  The neurology and oncology teams are really getting a workout.  We are praying and also ask for prayer for MD wisdom in treating Emilie, leg movement restoration and elimination of leukemia. 
(Photog Eric did a fine job, even capturing Nicolas trying to touch the mole under my chin.  Weird kid!)

1 comment:

Eva said...

I'm still praying for you guys. Emilie.. you are so strong and your family is blessed with your courage and joy! Keep leaning on the Lord.. He will provide!