Tuesday, March 13, 2012

Brothers Are Good Medicine!

Just a quick update.  Emilie is continuing to do well.  She is eating and drinking a bit.  Her first real meal was salmon and rice and the following day, she had salmon and rice. Pretty darn funny.  Emilie has an aversion to all hospital food, so it was shocking when she wanted salmon.  I mentioned in a previous post that Nicolas had salmon while in recovery from his bone marrow harvest.  One of our docs, wanted to know the Erickson salmon connection.  Must be in the genes!!!  Emilie is off all IV meds and taking everything by mouth.  She is still on liquid nutrition but that was reduced from 24 hours to 12 hours.  Good progress.  I met with one of the BMT coordinators today to discuss discharge instructions; we are expecting to move to RMH next week.  We were hoping a bit sooner, but 1.) they need to stabilize one of Emilie's meds, 2.) Emilie needs to eat and drink more and 3.) she is getting an IV only med until day 35.  Day 35 is next Tuesday, so we will probably be moving then or Wednesday.  The stem cell wing at Ronald's house has 6 rooms, 2 of which have kitchenettes.  We are hoping that Ronald is saving us a room with a kitchenette!!

Today, Emilie had her first of many bone marrow aspirates which always makes me a bit nervous since her relapse.  One of her docs came by to let us know that her "marrow looked beautiful".  Awesome news!!!  The sample is looked at here by LPCH pathology, it's also sent to Washington to determine the exact (if any) amount of disease and it's sent to a lab to look at host and donor cells.  Tomorrow or Thursday we should know really firm results.  Thank you Lord for good results and for keeping us afloat on our journey.
May the God of HOPE fill you with all JOY and PEACE in believing, so that by the power of the Holy Spirit you may abound in HOPE.  Romans 15:13
Oh, and brothers are truly good medicine....



Auntie Vicki said...

Great news. Ronald is scrubbing the kitchen for you guys we hope. Happy kids together. Loving you

Martha said...

Nice post, Patti!